In June 2019, information notices and consent forms – in their various forms: rare diseases, cancer; adults, minors, protected persons– were made available to the genomic platforms of the plan to be used during interviews with the first patients.
These documents were created as “draft” versions:
- Obtaining consent in genetics is organised primarily by regulation in line with the law on bioethics. Currently under examination by Parliament, it will be necessary to modify the information notices and consent forms created, once the new law has been voted in 2020.
- To ensure that these documents are fully operational and adapted to the health care setting, a consultation with professionals and patients is foreseen in the first half of 2020. Feedback will be taken into account for the new version of the documents.