The “Ethics, regulation and society” working group is led by:
- the Directorate-General for Health under the aegis of Arnaud de Guerra (DGS),
- Aviesan, with Anne Cambon-Thomsen, director of research director, CNRS, member of the European Group on Ethics in Science and New Technologies, and Christine Lemaitre, representative of the Ethics Committee, Inserm.
This group includes the various players concerned (lawyers, ministers, agencies, patient associations, health professional representatives, researchers and platform). The group works on different aspects: information and consent, data protection, and the societal dimension.